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Twisted Pink is a volunteer driven organization with a mission to cure breast cancer by funding metastatic breast cancer research while exposing the hidden statistics about the disease.

Hidden Statistics of Metastatic Breast Cancer (MBC):

  • Around 20% to 30% of people initially diagnosed with early stage disease will develop MBC.
  • MBC can occur 5, 10, or 15 years after a person’s original diagnosis and successful treatment checkups and annual mammograms.
  • Approximately, 6 to 10% of new breast cancer cases are initially diagnosed as Stage IV or metastatic.
  • Around 85% of breast cancers are not caused by family history.
  • About 155,000 people — women and men — are living with MBC in the United States.
  • MBC affects young women and men. Men do get breast cancer, and they are often misdiagnosed initially. They represent about 1% of the new cases of breast cancer and 1% of the deaths from MBC.
  • The median survival after a MBC diagnosis is 3 years, up from 18 months in 1970.
  • About 37 percent of women live at least 3 years after diagnosis with MBC.
  • Some women may live 10 or more years beyond diagnosis.
  • Metastatic breast cancer accounts for approximately 40,000 deaths annually in the U.S.
  • MBC is the leading cause of cancer death in women under 50 years of age.

Our Board of Directors

Senator Julie Raque Adams
julieradams@twc.com

Dace Polk Brown
dacemaki@mac.com

James E. Cole
jcole@middreut.com

Caroline Johnson, Founding Director
cvanjohnson73@twistedpink.org

Constanze Coon PhD, PMP
ccoon2014@gmail.com

Brandi Hitzelberger
behitz2@gmail.com

Stephanie Jones
svanjones@gmail.com

Lara MacGregor
lara@hopescarves.org

Jenny Nichols
jennynichols5@gmail.com

Kevin Judd, CPA
kevin@juddcpa.com

Robert Warrington
Rwarrington@Lockton.com