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Twisted Pink is a volunteer driven organization with a mission to cure breast cancer by funding metastatic breast cancer research while exposing the hidden statistics about the disease.

Hidden Statistics of Metastatic Breast Cancer (MBC):

  • Around 20% to 30% of people initially diagnosed with early stage disease will develop MBC.
  • MBC can occur 5, 10, or 15 years after a person’s original diagnosis and successful treatment checkups and annual mammograms.
  • Approximately, 6 to 10% of new breast cancer cases are initially diagnosed as Stage IV or metastatic.
  • Around 85% of breast cancers are not caused by family history.
  • About 155,000 people — women and men — are living with MBC in the United States.
  • MBC affects young women and men. Men do get breast cancer, and they are often misdiagnosed initially. They represent about 1% of the new cases of breast cancer and 1% of the deaths from MBC.
  • The median survival after a MBC diagnosis is 3 years, up from 18 months in 1970.
  • About 37 percent of women live at least 3 years after diagnosis with MBC.
  • Some women may live 10 or more years beyond diagnosis.
  • Metastatic breast cancer accounts for approximately 40,000 deaths annually in the U.S.
  • MBC is the leading cause of cancer death in women under 50 years of age.

Our Board of Directors

Senator Julie Raque Adams

Dace Polk Brown

James E. Cole

Caroline Johnson, Founding Director

Constanze Coon PhD, PMP

Brandi Hitzelberger

Stephanie Jones

Lara MacGregor

Jenny Nichols

Kevin Judd, CPA

Robert Warrington